Families of People with Disabilities: A Selected Bibliography
The materials listed below are available
to Indiana residents from the Center for Disability Information and Referral (CeDIR),
Indiana Institute on Disability and Community, Indiana's University Center
for Excellence on Disabilities, 2853 E. Tenth Street, Bloomington, IN
47408-2696, 800/437-7924 (toll
free in Indiana; voice/TT), 812/855-9396 (Bloomington; voice/TT).
Addison, A. (2003). One small starfish: a mother's everyday advice, survival tactics,
&wisdom for raising a special needs child. Arlington, TX: Future Horizons.
Band, E. (2001). Autism through a sister's eyes. Arlington, TX: Future Horizons.
Barron, J. (2002). There's a boy in here. Arlington, TX: Future Horizons.
Blancher, J. &Baker, B. (2002). Best of AAMR: Families and mental retardation.
Washington, DC: American Association on Mental Retardation.
Bowman, P., et al. (1994). From the heart: On being the mother of a child with special needs.
Bethesda, MD: Woodbine House.
Davis, B. (2001). Breaking autism's barriers: a father's story.
Philadelphia: Jessica Kingsley Publishers.
Family-centered care [videorecording]. (1988).
Washington, DC: Association for the Care of Children's Health. A 39-minute video.
A family focus [videorecording]. (1993).
Honolulu: First Generation Video. A 14-minute video.
Feiges, L. S. (2004). Sibling stories: Reflections on life with a
brother or sister on the Autism Spectrum. Shawnee Mission, KS: Autism Asperger Pub.
Gartner, A., Lipsky, D. K., &Turnbull, A. P. (1991).
Supporting families with a child with a disability: An international outlook. Baltimore: Paul H. Brookes.
Harris, S. (2003). Siblings of children with autism: A guide
for families. Bethesda, MD: Woodbine House.
Horn, E. (2004). Family-based practices. Longmont, CO: Sopris West.
Judge, S.L. (1998). Assistive technology for young children with disabilities:
A guide to family-centered services. Cambridge, MA: Brookline Books.
Karasik, J. &Karasik, P. (2003). The ride together: a brother and sister's
memoir of autism in the family. New York: Washington Square Press.
Kennedy, M. (2001). My perfect son has cerebral palsy. Bloomington, IN: 1st Books.
Klein, S. D., &Schleifer, M. J. (Eds.). (1995). It isn't fair: Siblings of children with disabilities.
Westport, CT: Bergin &Garvey.
Klein, S. &Schive, K. (Eds.) (2001). You will dream new dreams: inspiring personal stories
by parents of children with disabilities. New York: Kensington Books.
Leal, L. (1999). A family-centered approach to people with mental retardation.
Washington, DC: American Association on Mental Retardation.
Levine, C. (2000). Always on call: When illness turns families into caregivers.
New York City: United Hospital Fund of New York.
McHugh, M. (2003). Special siblings: growing up with someone with a disability.
Bethesda, MD: Woodbine House.
Meyer, D. J. (1995). Uncommon fathers: Reflections on raising a child with a disability.
Bethesda, MD: Woodbine House.
Meyer, D. J. (2005). The sibling slam book: what it's really like to have a brother or
sister with special needs. Bethesda, MD: Woodbine House.
Naseef, R. (2001). Special children, challenged parents. Baltimore, MD: Paul H. Brookes.
The next step [videorecording]. (1992). Columbus, OH: The Nisonger Center,
The Ohio State University. A 20-minute video.
Nurturing the families of chronically ill or disabled children [videorecording]. (1990).
Champaign, IL: Infant-Parent Institute. An 86-minute video.
Power, P. (2003). The resilient family: living with your child's illness or disability.
Notre Dame, IN: Sorin Books.
Roberts, R. N., Rule, S., &Innocenti, M. S. (1998). Strengthening the family-professional
partnership in services for young children. Baltimore: Paul H. Brookes.
Sakai, K. (2005). Finding our way: practical solutions for creating a supportive home and
community for the Asperger syndrome family. Shawnee Mission, KS: Autism Asperger Pub.
Seven ways to build strong relationships [videorecording]. (2001).
Washington DC: Zero to Three. A 22 minute video.
Thomas, J. (1997). Words of advice: A guidebook for families serving
as advisors. Bethesda, MD: Institute for Family-Centered Care.
Uzee, P. (1989). They don't come with manuals [videorecording].
Boston: Fanlight Productions. A 29-minute video.