• Advocates: Qualities to Look for and Choosing the Correct One for YOU
• Considering an Overnight Camp Program for your Child on the Autism Spectrum?
• Finding or Starting a Support Group
• Making the Most of the Holidays for Your Family and Your Son/Daughter on the Autism Spectrum
• Selected Bibliography for Families of People within the Autism Spectrum
• Selected National Resources for Information on Autism Spectrum Disorders
• Selected Resources for Understanding and Supporting Siblings
• Setting the Stage for Parent-Professional Collaboration
• Siblings Perspectives: Some Guidelines for Parents
• What About the Dads?
• When Your Child is Diagnosed with an Autism Spectrum Disorder
• What to Do If You Suspect Your Son/Daughter Might Have an Autism Spectrum Disorder
• For Parents: Preparing for the School Year

Selected Bibliography for Families of People within the Autism Spectrum

Contributed by Marci Wheeler, M.S.W.

Over the past few years, the proliferation of books on autism spectrum disorders continues to expand at an overwhelming rate. The following books were chosen as practical resources for family members. Many of the books included are frequently mentioned as favorites by family members. The books are divided into seven categories. Though some books might qualify under more than one category, only the one category that best targets the focus of the book was selected. Items may be available at your local library. Many may be borrowed by Indiana residents from the specialized library (also known as CeDIR) at the Indiana Institute on Disability and Community (IIDC), 2853 E. Tenth Street, Bloomington, IN 47408-2696, (800) 437-7924 (toll free in Indiana; voice/TT); (812) 855-9396 (Bloomington; voice/TT). The total CeDIR catalogue of holdings is now included and available to view online at www.iucat.indiana.edu.

Adolescents and Adults

Aston,M.(2003).Aspergers in love: Couple relationships and family affairs. New York, NY: Jessica Kingsley Publishers.

Barnhill, G. (2002). Right address………wrong planet: Children with Asperger syndrome becoming adults. Shawnee Mission, KS: Autism Asperger Publishing Company.

Bolick,T.(2001). Asperger syndrome and adolescence: Helping preteens and teens get ready for the real world. Glouster, MA: Fair Wind Press.

Gray, C. (1996). What's next?:. Preparing for the real world. Arlington, TX: Future Horizons, Inc.

Howlin, P. (1997). Autism: Preparing for adulthood. New York, NY: Routledge.

Jackson,L. (2002). Freaks, geeks and Asperger syndrome: A user guide to adolescence. New York, NY: Jessica Kingsley Publishers.

Smith, M. D., Belcher, R. G., & Juhrs, P. D. (1995). A guide to successful employment for individuals with autism. Baltimore, MD: Paul H. Brookes Publishing Company.

Lawson, W. (2003). Build your own life: A self-help guide for individuals with Asperger syndrome. New York, NY: Jessica Kingsley Publishers.

Meyer, R.N.(2001). Asperger Syndrome Employment workbook: An employment workbook for Adults with Asperger syndrome. New York, NY: Jessica Kingsley Publishers.

Newport, J. & Newport, M. (2003). Autism-Asperger's & Sexuality: Puberty and Beyond. Arlington, TX: Future Horizons, Inc..

Stanford, A. (2003). Asperger syndrome and long term relationships. New York, NY: Jessica Kingsley Publishers.

Willey, L.H. (Ed). (2003). Asperger syndrome in adolescence: Living with the ups, the downs and the things in between. New York, NY: Jessica Kingsley Publishers.

Wrobel, M. (2004). Taking care of myself: A hygiene, puberty and personal curriculum for young people with autism. Arlington, TX: Future Horizons, Inc..

Behavior Supports

Debbaudt, D. (2002). Autism, advocates, and law enforcement professionals: Recognizing and reducing risk situations for people with autism spectrum disorders. Philadelphia, PA: Jessica Kingsley Publishers.

Dickson, P. & Hannah, L. (2002). It can get better: Dealing with common behaviour problems in young autistic children; a guide for parents and carers. Shawnee Mission, KS: Autism Asperger Publishing Company.

Fouse, B. (and Wheeler, M. (1997). A treasure chest of behavioral strategies for individuals with autism. Arlington, TX: Future Horizons, Inc..

Gagnon, E. (2002). Power cards: Using special interests to motivate children and youth with Asperger syndrome and autism. Shawnee Mission, KS: Autism Asperger Publishing Company.

Greene, R. W. (1998). The explosive child: A new approach for understanding and parenting easily frustrated, “chronically inflexible” children. New York, NY: Harper Collins Publishers.

Groden, J. LeVasseur, P. Diller, A. & Cautela, J. (2002). Coping with stress through picture rehearsal: A how-to manual for working with individuals with autism and developmental disabilities. Providence, RI: The Groden Center.

Hodgdon, L.A. (1999). Solving behavior problems in autism: Improving communication with visual strategies. Troy, MI: Quirk Roberts Publishing.

Myles, B.S. & Southwick, J. (1999). Asperger syndrome and difficult moments: Practical solutions for tantrums, rage, and meltdowns. Shawnee Mission, KS: Autism Asperger Publishing Company.

Savner, J.L. & Myles, B.S. (2000). Making visual supports work in the home and community: Strategies for individuals with autism and Asperger Syndrome. Shawnee Mission, KS: Autism Asperger Publishing Company.

Whitaker, P., Joy, H., Harley, J., & Edwards, D. (2001). Challenging behavior and autism: Making sense-making progress. Shawnee Mission, KS: Autism Asperger Publishing Company.

Communication, Sensory, and Social Needs

Attwood, T. (2003). Why does Chris do that?: Some suggestions regarding the cause and management of the unusual behavior of children and adults with autism and Asperger syndrome. Shawnee Mission, KS: Autism Asperger Publishing Company.

Baker, J. (2001). The social skills picture book: Teaching play, emotion, and communication to children with autism. Arlington, TX: Future Horizons, Inc..

Freeman, S., & Drake, L. (1996). Teach me language: A language manual for children with autism, Asperger's syndrome, and related developmental disorders. Langley, British Columbia, Canada: SKF Books.

Gray, C. (2000). The new social story book (revised and illustrated). Arlington, TX: Future Horizons, Inc.

Gray, C. & White, A.L. (2003). My social stories book. New York, NY: Jessica Kingsley Publishers.

Greenspan, S.I. & Weider, S. (1998). The child with special needs: Encouraging intellectual and emotional growth. Reading, MA: Addison-Wesley.

Greenspan, S.I. and Lewis, D. (2002). The Affect-Based Language Curriculum (ABLC): An intensive program for families, therapists and teachers. Bethesda, MD: Interdisciplinary Council on Developmental and Learning Disorders.

Gutstein, S E. & Sheely, R.K. (2002). Relationship development intervention with young children: Social emotional development activities for Asperger syndrome, autism, PDD and NLD. New York, NY: Jessica Kingsley Publishers.

Gutstein, S.E. & Sheely, R.K. (2002). Relationship development intervention with children, adolescents and adults: Social emotional development activities for Asperger syndrome, autism, PDD and NLD. New York, NY: Jessica Kingsley Publishers.

Hodgdon, L. A. (1995). Visual strategies for improving communication, Vol 1: Practical supports for school and home. Troy, MI: Quirk Roberts Publishing.

Howlin, P., Baron-Cohen, S., & Hadwin, J. (1999). Teaching children with autism to mind-read: A practical guide for teachers and parents. New York, NY: John Wiley and Sons.

Kranowitz, C. S. (1998). The out-of-sync child: Recognizing and coping with sensory integration dysfunction. New York, NY: The Berkley Publishing Group.

Mc Afee, J. (2001). Navigating the social world: A curriculum for educating individuals with Asperger's syndrome, high functioning autism and related disorders. Arlington, TX: Future Horizons, Inc.

McGinnis, E., & Goldstein, A. P. (1997). Skill-streaming the adolescent: New strategies and perspectives for teaching prosocial skills. Champaign, IL: Research Press Company.

McGinnis, E., & Goldstein, A. P. (1990). Skill-streaming in early childhood: Teaching prosocial skills to the preschool and kindergarten child. Champaign, IL: Research Press Company.

Moor, J. (2002). Playing, laughing and learning with children on the autism spectrum: A practical resource of play ideas for parents and careers. New York, NY: Jessica Kingsley Publishers.

Myles, B.S., Cook, T., Miller, N.E., Rinner, L. & Robbins, L.A. (2000). Asperger syndrome and sensory issues: Practical solutions for making sense of the world. Shawnee Mission, KS: Autism Asperger Publishing Company.

Reese, P.B. & Challenner, N.C. (1999). Autism and PDD: Social skills lessons. East Moline, IL: Lingui Systems.

Rouse, C. and Katera. (1999). Quick and easy ideas and materials to help the nonverbal child “talk” at home. Solana Beach, CA: Mayer-Johnson Company.

Sonders, Susan A. (2003). Giggle time- establishing the social connection: A program to develop the communication skills of children with autism, Asperger syndrome and PDD. New York, NY: Jessica Kingsley Publishers.

Sundberg, P., & Partington, J. W. (1998). Teaching language to children with autism. Pleasant Hill, CA: Behavior Analyst Inc.

Sussman, F. (1999). More than words: A guide to helping parents promote communication and social skills in children with autism spectrum disorder. Toronto, Canada: Hanen Centre.

Vicker, B. (1996). Using tangible symbols for communication purpose: An optional step in building the two-way communication process. Bloomington, IN: Indiana University Indiana Institute on Disability and Community.

Weitzman, E. (1992). Learning language and loving it: A guide to promoting children’s social and language development in early childhood settings. Toronto, Ontario, Canada: Hanen Centre.

Winner, M.G. (2003). Thinking about you, thinking about me: Philosophy and strategies for the development of perspective taking for students with social cognitive defects. New York, NY: Jessica Kingsley Publishers.

Diet, Medication, and Self-Care

Boheme, P., Crissman, M., and Hasselberg, D. (1999). Visual toilet training. Naperville, IL: Little Friends, Inc.

Durand, V. M. (1998). Sleep better! A guide to improving sleep for children with special needs. Baltimore, MD: Paul H. Brookes Publishing Company.

Ernsperger, L. & Stegen-Hansen, T. (2004). Just take a bite: Easy, effective answers to food aversions and eating challenges! Arlington, TX: Future Horizons, Inc.

Gottshall, E. (2002). Breaking the vicious cycle: Intestinal health through diet (millennium edition). Ontario, Canada: Kirkton Press.

Legge, B. (2002). Can't eat, won't eat: Dietary difficulties and autistic spectrum disorders. New York, NY: Jessica Kingsley Publishers.

Lewis, L. (2001). Special diets for special kids two. Arlington, TX. Future Horizons, Inc.

Lewis, L. (1998). Special diets for special kids: Understanding and implementing dietary interventions for autistic children. Arlington, TX: Future Horizons, Inc.

Mc Candless, J. (2003) Children with starving brains: A medical treatment guide for autism spectrum disorder. Bramble Books

Seroussi, K. (2000). Understanding the mystery of autism and pervasive developmental disorder: A mother’s story of research & recovery. New York, NY: Simon and Schuster.

Shaw, W. (2002). Biological treatments for autism and PDD (second edition). Kansas City, KS: Great Plains Laboratory.

Small, M. & Kalente, L. (2003). Everyday solutions: A practical guide for families of children with autism spectrum disorders. Shawnee Mission, KS: Autism Asperger Publishing Company.

Tsai, L. (2001). Taking the mystery out of medications in autism: A guide for parents and non-medical professionals. Arlington, TX: Future Horizons, Inc.

Volkmar, F.R. & Wiesner, L.A. (2004). Healthcare for children on the autism spectrum: A guide to medical, nutritional and behavioral issues. Bethesda, MD: Woodbine House.

Wheeler, M. (1998). Toilet training for individuals with autism & related disorders: A comprehensive guide for parents & teachers. Arlington, TX: Future Horizons, Inc.

Wrobel, M. (2004). Taking care of myself: A hygiene, puberty and personal curriculum for young people with autism. Arlington, TX: Future Horizons, Inc.

Education

Beard, C. & Shelton, G. (2003). An introduction to special education. Bloomington, IN: Indiana University Indiana Institute on Disability and Community.

Cross, A.F. & Dixon, S.D. (2003). Adapting curriculum and instruction in inclusive early childhood classrooms. Bloomington, IN: Indiana University Indiana Institute on Disability and Community.

Cole, S., Horvath, B., Chapman, C., Deschenes, C., Ebeling, D.G. & Sprague, J. (2000). Adapting curriculum and instruction in inclusive classrooms: A teacher's desk reference (2nd edition). Bloomington, IN: Indiana University Indiana Institute on Disability and Community.

Fouse, B. (1996). Creating a “win-win IEP” for students with autism: A how-to manual for parents and educators. Arlington, TX: Future Horizons, Inc.

Guralnick, M.J. (1997). The effectiveness of early intervention. Baltimore, MD: Paul H. Brookes Publishing Company.

Handleman, J.L. & Harris, S.L. (2001). Preschool education programs for children with autism (2nd edition). Austin, TX: PRO-ED, Inc..

Hannah, L. (2001). Teaching young children with autism spectrum disorders to learn: A practical guide for parents and staff in general education classrooms and preschools. Shawnee Mission, KS: Autism Asperger Publishing Company.

Moyes, R.A. (2003). I need help with school: A guide for parents of children with autism and Asperger's Syndrome. Arlington, TX: Future Horizons, Inc.

Myles, B. S., & Adreon, D. (2001). Aspergers syndrome and adolescence: Practical solutions for school success. Shawnee Mission, KS: Autism Asperger Publishing Company.

National Research Council. (2001). Educating children with autism. Committee on Educational Interventions for Children with Autism. Division of Behavioral Social Sciences and Education. Washington, DC: National Academy Press.

Pratt,C., Vicker, B.& Davis, K. (2001). Early intervention for young children with autism spectrum disorders: Recommendations for designing effective programs. Bloomington, IN: Indiana University Indiana Institute on Disability and Community.

Siegel, L.M. (2000). The complete IEP guide: How to advocate for your special ed child. Berkley, CA: Nolo Press.

Strichart, S.S., Mangrum, C.T. & Iannuzzi, P. (1998). Teaching study skills and strategies to students with learning disabilities, attention deficit disorders, or special needs. Needham Heights, MA: Allyn & Bacon.

Twachtman-Cullen, D. (2000). How to be a Para Pro: A comprehensive training manual for paraprofessionals. Higganum, CT: Starfish Specialty Press.

Twachtman-Cullen, D., Twachtman-Reilly, J. (2002). How well does your IEP measure up? Quality indicators for effective service delivery. Higganum, CT: Starfish Specialty Press.

Wagner, S. (2002). Inclusive programming for middle school students with autism/Asperger’s Syndrome: Topics and issues for consideration by teachers and parents. Arlington, TX: Future Horizons, Inc.

Family and Individual Accounts

Barron, J., & Barron, S. (1992). There's a boy in here. New York, NY: Simon and Schuster.

Cohen, J. (2002). The Asperger parent: How to raise a child with Asperger syndrome and maintain your sense of humor. Shawnee Mission, KS: Autism Asperger Publishing Company.

Fling, E. (2000). Eating an artichoke: A mother's perspective on Asperger's syndrome. Philadelphia, PA: Jessica Kingsley Publishers.

Grandin, T. (1995). Thinking in pictures and other reports from my life with autism. New York, NY: Doubleday.

Hall, K. (2001). Asperger's syndrome, the universe and everything. London: Jessica Kinsley Publishers.

McDonnell, J. T. (1993). News from the border: A mother's memoir of her autistic son. New York, NY: Ticknor and Fields.

Maurice, C. (1993). Let me hear your voice. New York, NY: Alfred A. Knopf.

Newport, J. (2001). Your life is not a label. Arlington, TX: Future Horizons, Inc.

O’Neil, J. L. (1999). Through the eyes of aliens: A book about autistic people. Philadelphia, PA: Jessica Kingsley Publishers.

Park, C. C. (2001). Exiting nirvana: A daughter's life with autism. Boston, MA: Little, Brown, and Company.

Park, C. C. (1982). The siege: The first eight years of an autistic child with an epilogue, fifteen years later. Boston, MA: Little, Brown, and Company.

Paradiz, V. (2002). Elijah's cup: A family's journey into the community and culture of high functioning autism and Asperger syndrome. New York, NY: The Free Press.

Schneider, E. (2003). Living the good life with autism. New York, NY: Jessica Kingsley Publishers.

Shore, S. (2003). Beyond the wall: Personal experiences with autism and Asperger syndrome (2nd ed.).Shawnee Mission, KS: Autism Asperger Publishing Company.

Willey, L. H. (1999). Pretending to be normal: Living with Asperger's syndrome. New York, NY: Jessica Kingsley Publishers.

Willey, L.H. (2001). Asperger syndrome in the family: Redefining normal. New York, NY: Jessica Kingsley Publishers.

General Information

Attwood, T. (1998). Asperger's syndrome: A guide for parents and professionals. Philadelphia, PA: Jessica Kinglsey Publishers.

Donnellan, A. M. & Leary, M. R. (1995). Movement differences and diversity in autism/mental retardation. Madison, WI: DRI Press.

Faherty, C. (2002). What does it mean to me? A workbook explaining self awareness and life lessons to the child or youth with high-functioning autism or Aspergers. Arlington, TX: Future Horizons, Inc.

Gerlach, E. K. (2003). Autism Treatment Guide (3rd edition). Arlington, TX: Future Horizons, Inc.

Gillingham, G. (2000). Autism a new understanding! Solving the ‘mystery’ of autism, Asperger's and PDD-NOS. Edmonton, Alberta, Canada: Tacit Publishing, Inc..

Hamilton, L. M. (2002). Facing Autism: Giving parents reasons for hope and guidance for help. Colorado Springs, CO: Waterbrook Press.

Ives, M. & Munro, N. (2002). Caring for a child with autism: A practical guide for parents. Philadelphia, PA: Jessica Kingsley Publishers.

Maurice, C. Green, G., & Foxx, M.R. (2001). Making a difference: Behavioral intervention for autism. Austin, TX: PRO-ED, Inc...

Moreno, S., & Donnellan, A. M. (1991). High functioning individuals with autism: Advice and information for parents and others who care. Crown Point, IN: MAAP Services, Inc.

Janzen, J. E. (1999). Autism: Facts and strategies for parents. San Antonio, TX: Therapy Skills Builders.

Ozonoff, S., Dawson, G., Mc Partland,J. (2002). A parent's guide to Asperger syndrome and high-functioning autism. New York, NY: Guilford Press.

Powers, M. (2000). Children with autism: A parent's guide (2nd edition). Rockville, MD: Woodbine House.

Powers, M. & Poland, J. (2003). Asperger syndrome and your child: A parent's guide. New York, NY: Harper Collins.

Siegel, B. (1996). The world of the autistic child: Understanding and treating autistic spectrum disorders. New York, NY: Oxford University Press.

Vermeulen, P. (2000). I am special: Introducing children and young people to their autism spectrum disorder. London: Jessica Kingsley Publishers.

Waltz, M. (1999). Pervasive developmental disorders: Finding a diagnosis and getting help. Sebastopol, CA: O’Reilly & Associates Inc.

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Wheeler, M. (2002). Selected bibliography for families of people with autism. Bloomington, IN: Indiana Resource Center for Autism.