The following national agencies and organizations address various issues surrounding autism spectrum disorders and other disabilities. Contact each agency or organization for specific information about cost, type of services and resources, expertise of staff and other considerations. Dissemination of this list does not reflect official endorsement of any organization. Seeking information about autism spectrum disorders can be a time consuming and confusing process. It is hoped that by providing a list of frequently used resources that your information gathering journey will be made easier.
The Advocate Newsletter
Autism Society of America, Inc. (ASA)
7910 Woodmont Avenue, Suite 300
Bethesda, Maryland 20814-9015
Phone: (800) 323-8476
Fax: (301) 657-0869
Subscription is by membership to Autism Society of America, Inc.: $25.00 for individuals, $35.00 for families. Also provides various packets of information related to autism.
www.autism-society.org
The Autism National Committee- The Communicator
635 Ardmore Ave
Ardmore, PA 19003-1831
Membership fee of $10.00 for individuals with autism, $30.00 regular membership.
Send to: Jeff Strully, AutCom Treasurer, 35657 Anthony Rd, Agua Dulce, CA 91350
Mail order bookstore voice mail:
(800) 378-0386
www.autcom.org
Autism Research Review International
Autism Research Institute (ARI)
4182 Adams Ave.
San Diego, CA 92116
$18.00 quarterly subscription for individuals/outside US $20.00.
Phone: (619) 281-7165
Fax: (619) 563-6840
www.autism.com/ari
Autism Resource Network Inc.
904 Main Street
Hopkins, MN 55343
Phone: (952/612)* 988-0088
Fax: ( 952/612) 988-0099
Provide various resources and information about Autism Spectrum Disorders.
(*new and old area code respectively)
Autism Resources
www.autism-resources.com
Offers information and links regarding Autism Spectrum Disorders.
Web pages maintained by John Wobus
Autism Society of North Carolina
505 Oberlin Road Suite 230
Raleigh, NC 27605-1345
Operates an extensive mail order service for books on autism.
Phone: (919) 743-0204
Fax: (919) 743-0208
www.autismsociety-nc.org
Focus on Autism and Other Developmental Disabilities
PRO-ED Inc.
8700 Shoal Creek Blvd.
Austin, TX 78757-6897
ASA member $30.00, individual $39.00, quarterly publication.
Phone: (800) 897-3202
Fax: (512) 451-8542
www.proedinc.com
Future Horizons, Inc.
Future Horizons
721 W. Abram Street
Arlington, TX 76013
Publishes and sells extensive variety of materials on autism as well as offering conferences on autism throughout the country. Also publishes new Autism/ Asperger's Digest. Call for subscription information and rates.
Phone: (800) 489-0727
Fax: (817) 277-2270
www.futurehorizons-autism.com
Email: edfuture@onramp.net
The International Journal of Research and Practice
SAGE Publications (with National Autistic Society of the United Kingdom)
In North America contact:
SAGE Publications, Ltd.
PO Box 5096
Thousand Oaks, CA 91359
Publishes quarterly; full personal rate is $67.00 yearly. Some student and other discounts, and single issue rates available upon request.
London Office:
6 Bonhill Street
London EC2A 4PU, UK
Phone: +44(0)20 7374 0645
Fax: +44(0)20 7374 8741
www.sagepub.co.uk
Journal of Autism and Developmental Disorders
Plenum Publishing Corporation
233 Spring Street
New York, NY 10013-1578
ASA members $30.00, parents $75.00 for bi-monthly publication-- more technical than some publications.
Phone: (800) 221-9369
Fax: (212) 807-1047
www.wkp.nl
Email: info@plenum.com
Journal of Positive Behavioral Interventions
PRO-ED Inc.
8700 Shoal Creek Blvd.
Austin, TX 78757-6897
Individual subscription $39.00 for quarterly publication.
Phone: (800) 897-3202
Fax: (512) 451-8542
www.proedinc.com
The MAAP Newsletter (More Advanced Individuals with Autism, Asperger Syndrome, and Pervasive Developmental Disorders)
MAAP Services, Inc.
P.O. Box 524
Crown Point, IN 46307
$20.00 subscription for a quarterly newsletter for individuals in U.S.
Phone: (219) 662-1311
Fax: (219) 662-0638
www.maapservices.org
Email: chart@netnitco.net
The Morning News
c/o Carol Gray
2140 Bauer Road
Jenison, Michigan 49428
Quarterly newsletter subscription $18.00 for U.S., $20.00 Canada & Mexico in U.S. funds, and $22.00 in other countries.
Phone: (616) 457-8955
Fax: (616) 457-8442
The Source Newsletter
ASC-U.S. (Asperger Syndrome Coalition of the United States, Inc.)
PO Box 49267
Jacksonville, FL 32240-9267
Phone: (904) 745-6741
Email: aspen@cybermax.net
www.aspergers.org
Subscription is by membership to ASC-US: $35.00 for quarterly publication.
Organizations Founded to Support Autism Research
Allergy Induced Autism Support and Research Network (AiA)
8 Hollie Lucas Road, King's Heath
Birmingham, UK b13 OQL
Charitable organization dedicated to identifying the underlying causes and biomedical effects of autism spectrum disorders. Quarterly newsletter comes with paid membership. Focus is on forms of autism suspected of being triggered and/or exacerbated by foods.
Fax: (44) 0-121 444-6450
aia@hessick.demon.co.uk
www.kessick.demon.co.uk/aia.htm
Autism Autoimmunity Project
45 Iroquois Avenue
Lake Hiawatha, NJ 07034
Nonprofit charitable organization dedicated to funding research related to immune and immunogenic abnormalities related to autism spectrum disorders. Includes looking closely at the possible connection between autism and the effect of vaccines on the immune system. Twice yearly newsletter comes with paid membership.
Contact: Ray Gallup, truegrit@gti.net
www.gti.net/truegrit
Autism Society of America Foundation (ASAF)
7910 Woodmont Avenue, Suite 300
Bethesda, MD 20814-3015
Committed to working cooperatively with other autism groups and federal agencies (e.g., the National Institutes of Health, Centers for Disease Control) in discovering the cause(s) of autism. Also supports research into treatments, education and social issues impacting individuals with autism, and the dissemination of research information.
Phone: (800) 3AUTISM
Fax: (310) 657-0869
The Cure Autism Now Foundation (CAN)
5225 Wilshire Boulevard, Suite 226
Los Angeles, CA 90036
Large private funder of biomedical research on autism. Sponsors workshops on biomedical interventions. Some states have started local chapters. Also established the Autism Genetic Resource Exchange (AGRE); a gene bank established for autism research.
Phone: (323) 529-0500
CAN@primenet.com
www.canfoundation.org
Defeat Autism Now (DAN!)
c/o Autism Research Institute
4182 Adams Avenue
San Diego, CA 92116
Holds annual conference inviting top physicians and scientists from around the world. Focus is on autism spectrum disorders in relation to a wide variety of fields. The conferences have produced a manual "Biomedical Assessment Options for Children with Autism and Related Problems" and a list of physicians from various fields who practice alternative medicine and regard psychoactive drugs as their last choice of medical treatment.
Fax: (619) 563-6840
www.autism.com/ari/dan.html
National Alliance for Autism Research (NAAR)
66 Witherspoon Street, Suite 310
Princeton, NJ 08542
Large nonprofit organization with membership sponsored quarterly newsletter. Funds distributed to independent researchers focused on biomedical research addressing causes, prevention, treatment and cure of autism spectrum disorders.
Phone: (908) 359-9957
www.naar.org
Southwest Autism Research Center (SARC)
1002 East McDowell Road, Suite A
Phoenix, AZ 85006
Nonprofit community-based organization dedicated to autism research, education and community outreach. Conducts integrative research and serves as a satellite site for national and international projects. Provides information on current research as part of an extraordinary network of information.
Phone: (602) 340-8717
Fax: (602) 340-8720
www.autismcenter.org
Selected National Resources for Families
(Across Disabilities)
AAPD News (American Association of People with Disabilities)
PO Box 96987
Washington, DC 20090-6987
$19.95 for membership which includes a quarterly newsletter
Phone: (888) 712-4672
Email: aapd@aol.com
www.aapd-dc.org
Developmental Delay Resources (DDR) Newsletter
4401 East West Highway Suite 207
Bethesda, MD 20814
Sponsors conferences, quarterly newsletter, small mail-order bookstore focused on treatments related to nutrition, immune functioning and environmental causes of developmental delays. $40.00 for family membership, $25.00 for student or retiree
Phone: (301) 652-2263
Fax: (301) 652-9133
www.devdelay.org
Email: devdelay@mindspring.com
Exceptional Parent Magazine
555 Kinderkamack Road
Oradell, NJ 07649-1517
Phone: (800) 372-7368
Fax: (201) 634-6598
$36.00 subscription for individuals, 12 issues.
www.eparent.com
Families and Disabilities Newsletter
Beach Center on Families and Disabilities
3111 Haworth Hall
The University of Kansas
Lawrence, KS 66045-7516
Phone: (785) 864-7600
Fax: (785) 864-7605
www.beachcenter.org
Email: beach@dole.lsi.ukans.edu
Inclusion Press International
24 Thome Crescent
Toronto, ON Canada M6H 2S5
Small independent publisher/mail order agency which provides excellent resources on diversity, inclusion and change. The publishers also offers workshops around the world. Contact for a free copy of newsletter.
Phone: (416) 658-5363
Fax: (416) 658-5067
www.inclusion.com
Email: includer@idirect.com
Mental Health Aspects of Developmental Disabilities (MH/DD) Newsletter
Psych-Media, Inc.
PO Box 57
Bear Creek, NC 27207
Focuses on Mental Health topics for the DD population and ties research with treatment related to clinical practice. Quarterly publication US rate is $63.00 for individuals.
Phone: (336) 581-3700
Fax: (336) 581-3766
www.mhaspectsofdd.com
Email: mhdd@emji.net
National Information Center for Children and Youth with Handicaps (NICHCY)
Post Office Box 1492
Washington, DC 20013
Newsletter subscription and other packets of disability related materials, free of charge.
Phone: (800) 695-0285
Fax: (202) 884-8441
www.nichcy.org
Email: nichcy@aed.org
Newsbriefs Newsletter
Learning Disabilities Association of America
4156 Library Road
Pittsburgh, PA 15234-1349
$30.00 ($35.00 foreign) for membership which includes bi- monthly newsletter focusing on the broad spectrum of learning disabilities and on disabilities which overlap with learning disabilities.
Phone: (412) 341-8077 or
(412) 341-1515
Fax: (412) 344-0224
www.ldanatl.org
Email: ldanatl@usaor.net
PACER Center, Inc.
4826 Chicago Avenue, South
Minneapolis, MN 55417-1098
Parent Training and Information Project for the state of Minnesota. Provides a wide variety of newsletters, publications and materials, which are free or sold at cost. Also sponsors training events.
Phone: (612) 824-2966
Fax: (612) 824-3065
TDD: (612) 827-7770
www.pacer.org
PEAK Parent Center, Inc.
6055 Lehman Drive, Ste 101
Colorado Springs, CO 80918
Parent Training and Information Project for state of Colorado. They provide a wide variety of resource materials related to disability issues.
Phone: (800) 284-6251 or (719) 531-9400
Fax: (719) 531-9452
www.peakparent.org
Email: info@peakparent.org
Special Ed Advocate
Peter and Pam Wright
c/o The Special Ed Advocate
P.O. Box 1008
Deltaville, VA 23043
Phone: (804) 257-0857
A free online newsletter about special education legal issues, cases, tactics and strategy, effective education methods and internet links.
www.wrightslaw.com
Email: webmaster@wrightslaw.com
Wheeler, M. (2004). Selected national resources for information on autism spectrum disorders. Bloomington, IN: Indiana Resource Center for Autism.
