Indiana's Roadmap to Services: When You Are Concerned Your Young Child May Have an Autism
According to the Center for Disease Control and Prevention (CDC), the prevalence of ASD is 1 in 58. According to Indiana’s child count data from December 2012, the number of children served under the diagnostic category of ASD was 13,020; and with the December 2013 data, the number had grown to 13,675. By December 2014, this number had grown to 14,179 and by December 2015, there was an increase from the previous year of 1,112 for a total of 15,291. Child count data from December 2016 was 15,815 for an increase of 524 students ages 3-21. Last year’s child count data (December 2017) for children ages 3-21 was 16,356 for an increase of 541. This year’s child count data (December 2018) for children ages 3-21 is 16,715 for an increase of 359. This makes the prevalence this year 1 in 68. According to Indiana’s child count data, ASD is the fourth most prevalent disability category behind Specific Learning Disability, Language/Speech Impairment, and Other Health Impairment. The child count data does not include children who are not on special education service plans, are home schooled or are in non-public schools. All who have either an IEP or special education service plan are counted. While not totally accurate, this is the only actual data we have on prevalence in the state.
Indiana is one of several states benefiting from a Center for Disease Control and Prevention (CDC) grant focusing on earlier diagnosis and treatment for children with an autism spectrum disorder. The Indiana Resource Center for Autism and Riley Child Development Center at Indiana University and other key stakeholders across the state have partnered with the Indiana State Department of Health, through the Act Early Grant project, to develop materials that are focused on reducing the average age of diagnosis of children with autism as well as gaining earlier access to intervention services in Indiana.
Indiana’s Act Early team released a publication for mass distribution. This free brochure, Roadmap to Services: When You Are Concerned Your Young Child May Have an Autism Disorder, provides information on the early signs of autism in the areas of communication, social skills, and restrictive or repetitive interests, steps for obtaining a diagnosis, and where to find additional services and supports. The brochure, designed in sunny colors and early childhood imagery, answers the question many families ask, “What if I’m told to wait to see if he/she outgrows it?” The resources in this brochure empower families to take the next step they believe will help their child now.
How to Obtain
This brochure, is available free of charge to any individual or organization in Indiana concerned with the development of young children. An order form for this brochure is located at: https://www.iidc.indiana.edu/pages/irca-materials-request.
For more information, contact Cathy Pratt, Director, Indiana Resource Center for Autism, at (812) 855-6508 or e-mail firstname.lastname@example.org.
PDFs are available below in English and Spanish.